Jane’s soap box

A place to have a say about the issues of the day!

MEDIA CALL OUT!

Right now there are approximately 1200 people with Cystic Fibrosis waiting to access a lifesaving medication called Orkambi in Australia via the PBS. We need your help to spread the word, and pressure the government and pharmaceutical company to come to an agreement so lives can be saved. These people have been waiting for this medication since 2015

A very generous Australian singer/songwriter named Sandee Facy has joined the campaign to help spread awareness. Her story is remarkable. Imagine waking up one day after decades carving out a career as a singer, to write your first song  inspired by a young friend fighting for her life with CF. In the space of six hours you write and record the song, only to find out a few hours later that the person you have written for has lost her battle to CF aged 20. This is Sandee’s story and the song is called ‘Hummingbird’. Sandee is available for interviews and may even be able to sing live in studio on request.

Thanks so much for your support in helping us make a difference.

To organise an interview go to one of the links below

Go to https://www.youtube.com/watch?v=66i5cAbbAFc to listen to the song ‘Hummingbird’

 

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